Skip to main content

World Cerebral Palsy Awareness Day 2020!

In honor of CP Awareness Day this year, I wanted to share my personal story of CP. I'd love for all my readers and follwers to check it out! If you have any questions please, don't hesitate to ask! The following video and music were from the iMovie program. The graphics in the presentation are both from Google, and made with Canva.com I do not own the rights to the music in this video.
I was born  premature, a “micro preemie” weighing in at 1lbs, 9 oz’s (six before my first of nearly 20 related surgeries.) I began showing signs of seizure activity at the age of 2. From 2 to my early teens I was on medication to control them. I was walking on my own until the age of four. When I had a major growth spirit, that threw off my center of gravity. I never regained my center of gravity, so I then began using a wheelchair to get around.  
I did try using crutches when I was around 6, 7 years old but it didn’t pan out. I have also used AFO’s (leg braces) from the time i was four until today. About 2% of people with CP also have epilepsy. (I am fortunate enough not to be one of the 2 % to have epilepsy. I am however, part of the over 80% of people with CP that does deal with chronic pain. With people who have CP, they are likely to use 3 times more energy doing typical everyday tasks. Because of this fact, our bones age a lot faster, which means that we start showing signs of arthritis at a much early age then the average abled-bodied person.
I personally was told I had arthritis in my back, hips, and legs at the age of 18. As we age the CP will start to affect us in different ways physically. For example, some issues I have are with my spastic musicles and swallowing. The physical changes affect people, children all in different ways. There have even been cases of CP diagnosed later on in a person’s life at an older age. As you can tell by my video. CP is a very complex disability. There are about 17 million world-wide diagnosed with CP. 
Why do we go green for March? We go green to bring more awareness and education, basic knowledge about CP. Because there still many things that we all need to be aware of both from the medical standpoint, and the personal standpoint. Still want to know more about Cerebral Palsy? Check out this site: https://www.yourcpf.org/ There are also a wide variety of pages, groups, and advocates that can be found using any social media platform today. We have grown leaps and bounds when it comes to connecting/networking with like-minded people who share the same story as myself.
Want to connect with me personally!? 
Facebook: The Abler, The Official Facebook Group Of The Abler Blog
twitter : @J4theablerblog1
Instagram: @theablerblog
 You can also checkout some of my articles for The Mighty here:


I am also on Linkedin. Simply search: Jessica Niziolek, and let’s connect!



Comments

  1. Health LINEApril 2, 2020 at 10:42 AM

    It feels good to have read your post. I got a lot of good thoughts here. You must be brilliant to have come with writing articles that could inspire and help a lot of your readers. I feel like going to visit this site more often. Beauty and health

    ReplyDelete

Post a Comment

Popular posts from this blog

Part 1: Polycystic Ovary Syndrome: Don’t be surprised if you hear, “I have that too."

    Polycystic Ovary Syndrome Is a very common, and miss diagnosed condition, among women between the ages of 20-40.  And can cause infertility with polycystic ovaries. The statics vary as to how many women have PCOS because the criteria for the condition is always changing. But here is what I found under The National Institutes Of Health. One in every 10-15 women gets diagnosed with PCOS. I also heard that about 50% of women do not know they have PCOS. Via, pcosdiva.com I also found on the site, rightdiagnoisis.com that about 50% of women are insulin resistant. The typical age bracket for being insulin resistant is about 20-40 years of age.  And about only 30% have symptoms of PCOS. PCOS is a syndrome that not only affects fertility but can affect metabolism, insulin levels, high blood pressure and much more. t is a syndrome that not only affects fertility but can affect metabolism, insulin levels, high blood pressure and much more. How to diagnose? You...
22 comments
Read more

My Review On HoneyColony's New TopIcal Hemp Oil For Chronic Pain

The Abler Blog’s Product Review On Morpho A Liposomal CBD LINIMENT Morpho - Topical CBD Photo was taken by Jessica Niziolek  I recently tried Morpho, a new CBD topical liniment meant to  relieve joint, muscle, and chronic pain. Morpho is a brand new product for the HoneyColony platform. For those that have not heard of Simply Transformative or their products, they are firm believers in healing the mind, body, and spirit by using natural remedies rather than the Pharmaceutical route. Which is a sister site to Simply Transformative simply transformative.com. Being someone who has constant pain due to my Spastic Hemiplegia Cerebral Palsy, and trying to find something that would help with my daily pain and discomfort, has been an added challenge. So. When the opportunity came for me to review this product, I did not hesitate. This product has truly been a life-saver. From the moment I began using this product my feet and leg cramping, spasms, and nerve pai...
15 comments
Read more

PCOS Part 2, Interview with Meredith Marx: Her Journey with PCOS and IVF

Meredith Marx. is a traffic reporter for the radio station,1007, The Bay, Baltimore/DC/VA area traffic reporter since March 2000. Fox 45 morning news on camera for 2 years. Stations include: 100.7, 105.7, 106.5, 101.9, 102.7, 104.3, DC101, WASHFM, 100.3, Hot 99-5, WCBM, WWLG, WNST, Channel 11, Channel 2, Channel 13 and many more.  She has been open about her personal journey with PCOS, IVF (In vitro fertilization.)  You can find Meredith on twitter and Facebook. For More information on what IVF is, what the steps of IFV are, and what the possible cost of IVF is please follow these links.  http://americanpregnancy.org/infertility/in-vitro-fertilization/   http://attainfertility.com/article/get-pregnant   http://www.advancedfertility.com/ivf-cost.htm   I would like to personally Thank Meredith for agreeing to talk about such a personal topic and for being so honest and open with her story. I hope this interview helps any woman in need of some h...
10 comments
Read more