Skip to main content

My sister is why I do what I do. Cluster Headaches are NOT "just a headache"


http://www.cnn.com/2017/10/03/health/migraines-cluster-headaches-most-painful/index.html


The following is very intense and should not be viewed with littles ones in the room. My sister is a 7 year CH warrior. She is the reason why I began my work with the abler. The following was written by her.

Cluster Headaches. 
Please take a moment and research this condition (quick YouTube and/or Google search). I have been a chronic cluster headache sufferer going on 7 years now. This is THE MOST painful condition known to mankind. This is in no way an exaggeration and can not even remotely be compared to a migraine. As a chronic migraine suffer as well, I can say this without any doubt. I have anywhere from 3 to 5 attacks EVERY day. I am afraid to go to sleep every night because I know this beast will attack without warning and without mercy. 
I went to school and graduated with my BS from NYU-Poly and went on to receive my MS and graduate as Valedictorian from Full Sail University. This condition has left me exhausted and in chronic pain every day. It has prevented me from pursuing a career and a life of independence. It has derailed my life at the age of 28. But I will NOT give up and I ask you all to fight with me. 
When many hear Cluster Headaches, they assume, "Oh, it's just a headache. Take an aspirin." Or "I get migraines too. I just take a nap." Believe me when I say, this is NOT a headache. This is a pain unlike anything you've imagined or experienced. It is more painful than natural childbirth (plus it doesn't come with the reward of a child), it surpasses the pain of breaking a bone, and it is terrifying and debilitating. 
What is worse is that Cluster Headaches can be classified as an invisible illness. At times I may appear perfectly fine, but inside I am in complete agony. Just because someone doesn't "look" sick, does not mean they aren't fighting a constant battle internally. 
I am asking my friends, my family, and those of you who I may not know that well, to take just a moment out of your day and repost this article and help me raise awareness and encourage research for Cluster Headaches. I have hope and faith that I will find relief and that there will eventually be a cure. Reposting this takes less effort than that quiz you just took or that funny cat video you just watched. Please, help me bring this condition to the forefront and help stop the misconceptions of Cluster Headaches.

My sister's life depends on the medical field and the general public to start taking CH serious. lives are being altered and diminished by a monster of a disease the medical field seems to respond with simply saying, we don't know enough about it. And it is also assumed  that if we can't see it under a microscope it must be that serous or even exist at all. It does exist, and it is very serious. Please, Pay attention.  

Comments

Post a Comment

Popular posts from this blog

New Monthly Topic For April Dwarfism

April’s Topic For The Abler Blog: Dwarfism Resource: Mayoclinic.org Author Note: I am in no a professional of any kind. I am strongly against self-diagnosis, and encourage my audience to please seek the professional advice of their own trusted medical professional and any other trusted professional depending on the topic at hand. The Abler Blog ONLY PROVIDES LIMITED GENERAL INFORMATION, and ALWAYS CITES WHERE THEY FIND THEIR RESOURCES AND OR INFORMATION. Jessica Niziolek, Founder Of The Abler Blog, and online community. What is dwarfism? It means to be short in stature. Typically the average height for someone with this condition is: four feet, ten inches or less. Because there are several different health conditions that are link to dwarfism so this condition is broken down into 2 catogories. Disproportionate dwarfism. If body size is disproportionate, some parts of the body are small, and others are of average size or above-average size. Disorders causing disproportio
Post a Comment
Read more

My Review On HoneyColony's New TopIcal Hemp Oil For Chronic Pain

The Abler Blog’s Product Review On Morpho A Liposomal CBD LINIMENT Morpho - Topical CBD Photo was taken by Jessica Niziolek  I recently tried Morpho, a new CBD topical liniment meant to  relieve joint, muscle, and chronic pain. Morpho is a brand new product for the HoneyColony platform. For those that have not heard of Simply Transformative or their products, they are firm believers in healing the mind, body, and spirit by using natural remedies rather than the Pharmaceutical route. Which is a sister site to Simply Transformative simply transformative.com. Being someone who has constant pain due to my Spastic Hemiplegia Cerebral Palsy, and trying to find something that would help with my daily pain and discomfort, has been an added challenge. So. When the opportunity came for me to review this product, I did not hesitate. This product has truly been a life-saver. From the moment I began using this product my feet and leg cramping, spasms, and nerve pain changed
15 comments
Read more

Part 1: Polycystic Ovary Syndrome: Don’t be surprised if you hear, “I have that too."

    Polycystic Ovary Syndrome Is a very common, and miss diagnosed condition, among women between the ages of 20-40.  And can cause infertility with polycystic ovaries. The statics vary as to how many women have PCOS because the criteria for the condition is always changing. But here is what I found under The National Institutes Of Health. One in every 10-15 women gets diagnosed with PCOS. I also heard that about 50% of women do not know they have PCOS. Via, pcosdiva.com I also found on the site, rightdiagnoisis.com that about 50% of women are insulin resistant. The typical age bracket for being insulin resistant is about 20-40 years of age.  And about only 30% have symptoms of PCOS. PCOS is a syndrome that not only affects fertility but can affect metabolism, insulin levels, high blood pressure and much more. t is a syndrome that not only affects fertility but can affect metabolism, insulin levels, high blood pressure and much more. How to diagnose? Your doctor can order testi
22 comments
Read more